I just signed up for the Army of Women with Dr. Susan Love. The article that I pasted below was from that site. I would suggest that every woman sign on to this site. You don't have to do anything but put your contact information up. You will get information sporadically about studies that you might want to participate in. You are not obligated to do anything but be informed. http://www.armyofwomen.org/
I am thankful to all of the women, including one of my sisters, who are all ready participating in the Sister Study.
The Success of the Sister Study
Posted by Dr. Susan Love at 12:23 pm
We did it! I always thought that an Army of Women would step up to the plate, but this week we proved it.
The first “Call to Action” was sent out on Tuesday, October 28, and the response was incredible.The Sister Study has been recruiting sisters of women who have had breast cancer since it was started in 2002. Their goal is to recruit 50,000 diverse women from all walks of life. They told us that they needed to recruit just 5000 more women, and that they specifically needed African American women, Latinas, and white women with only a high school education.We knew that a number of the women who had enrolled in the Army of Women would not fit that description. But the amazing news is that over 2200 of you not only did fit the description, but signed up for the Sister Study within 24 hours! The scientists running the Sister Study were ecstatic—and so are we.No matter what type of research you are doing, one thing stays the same: The faster you recruit the people you need, the faster you figure out the answers. If you know anyone that fits the description the Sister Study researchers need, please, please, please send them to the Army of Women!
There are now more than 240,000 women in the Army of Women. I would love to hit 300,000 before the end of the month. So get to work recruiting! And stay tuned for our second Call to Action!
Thanks!Susan Love
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2 comments:
I just found your blog today, as I am awaiting a second appointment with my GYN ... I am almost positive I have IBC, but she thought the rash was a spider bite and wanted to wait a week before seeing me again.
I seem to have classic symptoms - itchy nipple on my right breast for about 6 months (who would have thought that meant anything?)and now a red rash that came out of nowhere and has not subsided at all in over a week. I am 60 years old, so well within the demographic.
I am so frightened - have an appointment to see my GYN again on Monday, so the weekend will be fillied with anxiety. I've been stupidly obsessing over the internet information. Glad to read that you are a survivor, as so many sites seem to be all doom and gloom.
I guess I have a long hard road ahead ...
Leslie
I'm not sure if you got my follow up e-mail. Please know that I am thinking of you and I am here for you. The booklet that I wrote for newly diagnosed women might help you. Just print it out from the pdf form on this web site. If there is anything I can do to help please let me know. You have to know that what you are going through right now is the worst. Once you find out what you are dealing with you will be able to put one foot in front of the other. Make sure that you check dates on anything you read from this point forward. We have come a long way. The prognosis is not as dire as it was even a few years ago.
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